I know I’ve kept you waiting. I started a new job recently (I’ve traded my bus keys for an apron and am now a lunch lady at our kids’ school!) and have been adjusting to a new schedule that’s pretty much the opposite of what I’d been doing. So, you know, life. I thought maybe you would all like something more uplifting to read today than the election coverage so . . . here we are!
With relief, we finally received confirmation late last week that Keith’s tumor is benign. They called it a focal myositis. It’s very rare, especially in that area of the body, but generally resolves on it’s own. Reading the pathologist’s report, you could almost hear how excited he was to have gotten to diagnosis it. He actually said thank you for allowing him to work on the case! Ha! So, for now, we just keep an eye on it to make sure it doesn’t continue growing or cause any other issues. So crazy. The man with a rare dementia, now has a rare benign tumor. Go figure. Maybe we should start playing the lottery!
Memory issues have continued to be more prevalent, but its manageable. After a visit with the neurologist, it may be due to the gabapentin he’s taking for his back pain, but it’s a chicken or the egg thing, and ultimately doesn’t matter. The gabapentin is keeping his pain at a tolerable level so, what do you do? The little mix ups of what day it is or having to repeat information occasionally is a small price to pay for some comfort. We discussed surgery with the neurologist but there are no guarantees and, because anesthesia can be really hard on FTD brains, they aren’t eager to do it. Work is the one thing that makes the pain unbearable, so I’m not sure how long he’ll be able to keep doing his two days a week, but that’s yet another decision. It’s really hard to know the best thing to do.
I think I’m going to leave things here today. The air everywhere feels charged with anticipation as we await the election results. I’d like to share something I’ve alluded to a few times in various conversations:
Try to remember, no matter who ends up winning this thing, all they’ve done is win an election. Neither is going to be a Savior, nor are they going to be the downfall of civilization. Rather than wasting precious energy worrying about who will be sitting in the Oval Office for the next four years and what they may or may not do while there, channel that energy into things that will matter to the people around you right now. Let someone go ahead of you in line, throw a few extra groceries in your cart for the food bank (and please make it good groceries – not just the cast offs from the back of your pantry), help out or donate to your local pregnancy resource center, serve a meal at a homeless shelter and take the next step of visiting with the people there and listening to their stories. There are so many ways we can change our own little corner of the world every single day. Life is precious and short. Don’t squander it.
Till next time . . . this is dementia.